Mutumin da ke da ciwon sukari yana da hakkin ya yi abin da yake ƙauna! Tattaunawa tare da Member DiaChallenge Project on Diabetes

A ranar 14 ga Satumba, YouTube za ta fara wani aiki na musamman - wasan kwaikwayon na gaskiya na farko da zai kawo mutane tare da masu cutar siga guda 1. Babban burinsa shine ya karya ra'ayoyin marasa lafiya game da wannan cutar kuma su faɗi abin da kuma yadda za a canza yanayin rayuwar mutumin da ke da ciwon sukari don mafi kyau. Mun nemi mahalarta DiaChallenge Daria Sanina da ta raba mana tarihinta da abubuwan ban sha'awa game da aikin.

Daria Sanina

Dasha, don Allah gaya mana game da kanka. Shekaru nawa ne kuke da ciwon sukari? Me kuke yi? Ta yaya kuka hau DiaChallenge kuma menene kuke tsammani daga gare ta?

Ni 29 years old, ciwon sanina yana da shekara 16. 15 daga cikinsu ban bi son sugars (sukari jini) - kimanin ed.) da kuma rayuwa bisa mizanin "tsawon shekaru zan rayu - nawa zan rayu." Amma cikakken rai, zuwa ga cikakke. Gaskiya ne, rayuwa mai inganci bata yi aiki ba. Raunin kafa, raɗaɗi, fashewar abinci, matsaloli tare da narkewar abinci. Tsarin insulin a cikin ido. XE bai kirga ba. Ta wani abin al'ajibi, Na yi nasarar tsira har zuwa yau. (Ta yaya zan iya yin wannan?) Ina tsammanin masu sauke farala na jiragen ruwan da mahaifiyata ta sanya (ita likita ce), sha'awar wasanni, kayan rayuwa da kuma kyakkyawan mala'ika mai kulawa. Ina da karamin kasuwancin jan hankali. Kwanan nan, Ina bin wani shafi a kan Instagram inda na fada kuma na nuna cewa cutar sankara ba magana ce ba.

A watan Satumbar 2017, na shigar da famfo na insulin, tunda na ga wani talla don shigarwa kyauta a kan Instagram kuma na yarda da cewa famfon shine panacea ga masu ciwon sukari kuma zai kwashe min komai. Don haka - wannan ba daidai bane! Dole ne in yi rajista a makarantar sukari don gano yadda famfon yake aiki, in kuma sake samun masaniya game da ciwon sukari da jikina. Amma har yanzu ba a sami isasshen ilimin ba, sau da yawa ina hypovated (daga kalmar "hypoglycemia", wanda ke nufin saukar da sukari na jini cikin haɗari - kimanin ed.), sami nauyi kuma yana son cire famfon.

A shafin mai samarwa na tauraron dan adam, na ga bayani game da jefawa a cikin aikin DiaChallenge, wanda yake da matukar mahimmanci a gare ni, tunda ina son Kasada. Haka ne, daidai ne abin da na yi tunani a lokacin da suka zabe ni - kasada. Amma ban yi tunanin cewa wannan kasada za ta canza rayuwata gaba ɗaya ba, halayena na cin abinci, yadda na ke biye da horarwa, koya min yadda ake zaɓar allurar insulin, kada ku ji tsoron rayuwa tare da ciwon sukari kuma, a lokaci guda, jin daɗin rayuwa.

Menene abin da kuka yi na ƙaunatattunku, dangi da abokai yayin da aka gano cutar ku? Me ka ji?

Kunya. Tabbas, abin mamaki ne.

Na yi shekaru 12, a cikin wata 13. Na fara shan ruwa mai yawa, na ruga zuwa ɗakin bayan gida a cikin aji kuma na ci komai. A lokaci guda, Ni yarinya ce ta bakin ciki. Ban yi rashin lafiya ba, ban damu ba, kuma gabaɗaya, babu abin da ke ciwo.

Lokacin da na fara gudu zuwa bayan gida sau 3-5 a kowane darasi, na fara tunanin cewa wani abu har yanzu ba daidai ba ne. Har yanzu ina tuna famfon a bayan gida da yadda nake shan ruwa daga can cikin lita, shine ruwan da yafi dadi a duniya ... Kuma dole na yiwa mahaifiyata korafi.

Mama ta rubuto min asibitin, bayar da gudummawar jini. Na tsallake makaranta a ranar. Ya tsarkaka! A likitan ya shawarce ni kada in jingina ga masu siye da kuma jira sakamakon. Na je na sayi kaina da burodin tare da tsintsayen furanni, an rufe ni da cakulan (Ina da ƙarancin yara, ban saurari kowa ba). Na zauna a gida, na yanke jiki na sanyaya hannu, na yi matukar farin ciki daga wannan sa'a - tsallaka makaranta. Sannan mahaifiyata ta zo da gudu tare da sakamakon binciken - 12 mmol tare da ka'idar 4-6 mmol - kuma ta ce: "Ku shirya, za mu je asibiti, kuna da ciwon sukari."

Ban fahimci komai ba, ba ni da lafiya, ba abin da ya dame ni, Me ya sa nake asibiti? Me yasa suke ba ni 'yan iska, hana ni ci Sweets da inje injection kafin cin abinci? Don haka a, Ni ma cikin mamaki.

DiaChallenge - gaskiya ce ta farko ta duniya game da rayuwar mutane masu fama da ciwon sukari

.Shin akwai wani abin da kuke fata game da shi amma ba ku iya yin ba saboda ciwon sukari?

A'a. Dukkanin mafarkina tabbas zai zama gaskiya, kuma ciwon sukari ba matsala ba ne a cikin wannan, sai dai mataimaki. Ciwon sukari dole ne a koya a sha. Tare da mu (mutanen da ke da ciwon sukari - kimanin ja.) babu kawai insulin, kuma komai shine kawai daga rashin horo da rashin ilimi.

Wace fahimta ce game da ciwon sukari da kuma kanku a matsayin mutumin da ke rayuwa tare da ciwon sukari ka sadu?

Kafin shigar da famfo da kuma nutsewa cikin duniyar mutanen da ke fama da ciwon sukari, na yi tsammani sun cika. Abin da ya ba ni mamaki lokacin da na gano cewa akwai masu ciwon sukari tsakanin kyawawan 'yan wasa masu kyau, da kuma cewa ciwon sukari ba ya hana wani kyakkyawan jiki, amma lalaci.

Kafin haduwa da girlsan matan game da aikin (Olya da Lena), na yi tunani cewa haihuwar masu ciwon sukari yana da wahala sosai da zaran na shirya yin juna biyu, ana iya share ni daga rayuwata duk shekara, tunda zan zauna a asibiti. Wannan babban kuskure ne. Tare da ciwon sukari, suna tashi / shakatawa / wasa wasanni kuma suna rayuwa kamar yadda mata masu juna biyu ba tare da ciwon sukari ba.

Idan mashahurin kirki ya gayyace ku don cika ɗayan burin ku, amma ba zai cece ku daga ciwon sukari ba, me kuke so?

Babban buri na shine in zauna kusa da teku ko tekun.

Hoto daga yin fim ɗin DiaChallenge. Daria Sanina tare da mai horar da Alexei Shkuratov, wanda, kamar mahalarta, yana da nau'in ciwon sukari na 1

Mutumin da yake da ciwon sukari zai yi bacci ko ba dade ko ba jima, ya damu da gobe har ma da baƙin ciki. A irin waɗannan lokutan, tallafawar dangi ko abokai na da matukar muhimmanci - menene ra'ayin ku? Me kuke son ji? Me za a yi domin ku taimaka sosai?

My girke-girke shine kalmomin mahaifiyata. Haka kuma, koyaushe iri daya suke: "Ka tuna abin da kayi nasarar tsira, sauran duk wannan maganar wauta ce, kuna da karfi - zaku iya hakan!"

Gaskiyar magana ita ce, shekaru 7 da suka gabata a cikin raina akwai wani lamari, tunanina wanda ya sanya ni damuwa sosai lokacin da na fara gunaguni. Gefen hagu na na ciki ya fara rauni sosai. A cikin tsawon wata guda, sun dauke ni zuwa dukkan asibitocin kusa da gidan, suka yi gwajin duban dan tayi, suka dauki gwaje-gwaje. Da farko dai, lokacin da likitoci suka ji game da ciwon ciki a cikin cutar sankarar mahaifa, tuhuma ta fadi kan cututtukan cututtukan fata da kodan. Ba su sami wani abu kamar haka ba. Na daina cin abinci, kuma na fara ketoacidosis, wanda ke hade da raɗaɗi a cikin jiki duka, musamman cikin ciki, kuma na riga na same shi. Da alama a gare ni na yi tunanina. Da alama ba ni kaɗai ba, wannan shine dalilin da ya sa suka gayyace ni zuwa masanin ilimin halayyar ɗan adam, ta roƙe ni in ci, kuma na roƙe in yi wani abu da wannan zafin. Kuma an kira ni zuwa likitan mata. Lahadi, maraice, likitan da yake kira ya sami kwaro na kwayayen hagu na. Tinyan karamin cyst wanda ba a sarrafa shi. Kuma kawai idan, ya kira likitan mata. Kuma a karkashinta na yanke santin 4 na wani tsiro mai dauke da cutar siga. Anesthesia, acetone yana ci gaba da ƙone ni daga ciki, ana kai ni cikin kulawa mai zurfi. Ba da jimawa ba Mama ta yarda cewa an gaya mata cewa 'yarta ba za ta tsira da' yarta ba har sai da safe. Babu wani abu, ya tsira. Watanni da yawa ban tashi daga kan gado ba, masu dige-zagaye-zagaye, na koyi cin abinci kuma, sake tafiya, na rasa kilo 25. Amma ta dawo rai. Sannu a hankali, tare da taimakon dangi.

Tunanina kan halaye sun canza. Na sami damar rayuwa, ba kowa ne za a iya ba shi ba. Ba ni da 'yancin in daina ko in shawo kan wannan maganar ta rashin hankali kamar mummunar yanayi, juyayi da kai.

Ta yaya zaku goyi bayan mutumin da ya gano cutar sannu a hankali kuma bai iya karɓa ba?

"Idan kana son rayuwa, yi," in ji Dasha Sanina.

Idan kana son rayuwa, aikata shi. Komai yana hannunka.

Na ɗauki shekaru 15 kafin in yarda da ciwon sukari. Na shekara 15 ina azabtar da kaina, mahaifiyata da kuma ƙaunatattuna. Ban yarda ba kuma ban ji da lafiya ba! Dukda cewa da gaske nakeso nayi imani dashi.

Kada ku ɓata lokacinku! Ba kowa bane ke da sa'a kamar ni. Shekarar lada ta isa mutum ya kasance yana nakasa har tsawon rayuwarsu.

Nemi sauran masu ciwon sukari! Kasance tare da jama'a, saduwa, sadarwa, tallafi iri ɗaya ne kamar ku, kuma wani lokacin misali, gaskiya tana taimakawa!

Koyi don dariya da kanka, a yanayin dia. Kuma kawai murmushi mafi sau da yawa!

Menene dalilinku na shiga cikin DiaChallenge?

Motsi: Ina so in haihu da lafiyayyun yara kuma in rayu har zuwa tsufa, in koya yadda zan iya magance matsalolin kaina da kaina kuma in nuna ta misalaina cewa ba a yi latti in canza rayuwata don kyau ba.

Mene ne mafi wuya abu a kan aikin kuma menene mafi sauƙi?

Yana da wuya a koyi horo: adana abin lura da kamun kai a kowace rana, kar a ci dumbin carbohydrates, a tattara kwantena da tunani akan abinci gobe, koya ƙidaya da lura da abubuwan kalori na yau da kullun.

Bayan bincike daga likitan mahaifa a farkon aikin, na sami rikice-rikice a idona, Dole in yi aikin injin da injinan jirgi don kada ƙarancin retinal ya faru daga baya. Wannan ba shine mafi munin ba kuma mafi wahala. Yana da wuya a tsira daga rashin wasanni yayin asibiti.

Yana da wuya ku ji matsananciyar yunwa na tsawon awanni 6-8 a asibiti lokacin da suka duba asalina. Zai yi wuya ka bincika tushe kuma ka tsani kanka. Kuma yana da wahala a dakatar da yin tambayoyi ga mahaɗa game da aikin, lokacin da aka fara aikin mai zaman kansa, don tsira daga rabe tare da mahalarta, masana, da masu shirya fim.

Amma abu mafi sauki shine a samu lokaci kowane Lahadi inda ake fahimtar ku.

Sunan aikin ya ƙunshi kalmar Kalubale, wanda ke nufin “ƙalubale”. Wane kalubale kuka fuskanta lokacin da kuka shiga cikin aikin DiaChallenge, kuma menene ya samar?

Na kalubalanci raina da tsoro na, na canza rayuwata gaba daya, tunanina game da cutar sankara kuma na fara zuga mutane kamar ni.

MORE GAME da aikin

Aikin DiaChallenge tsari ne na tsari guda biyu - kundin gaskiya da nuna gaskiya. Ya samu halartar mutane 9 da ke da nau'in ciwon sukari na 1 1: kowannensu yana da nasa buri: wani yana son koyon yadda za a rama ciwon sukari, wani yana son samun lafiya, wasu sun magance matsalolin tunani.

Tsawon watanni uku, masana uku sunyi aiki tare da mahalarta aikin: masanin ilimin halayyar mutum, masanin ilimin endocrinologist, da mai horo. Dukkansu suna haɗuwa sau ɗaya kawai a mako, kuma a cikin wannan ɗan gajeren lokacin, masana sun taimaka wa mahalarta su sami vector na aiki don kansu kuma sun amsa tambayoyin da suka taso musu. Mahalarta sun rinjayi kansu kuma sun koya yadda ake sarrafa ciwon sukari ba cikin yanayin wucin gadi ba sarari, amma a rayuwar yau da kullun.

Mahalarta da masana na gaskiya suna nuna DiaChallenge

Kamfaninmu shi ne kawai ya samar da mita mitir na taro a cikin kasar Rasha kuma a wannan shekara ta cika shekara 25 da kafuwa. An haifi aikin DiaChallenge ne saboda muna son ba da gudummawa ga ci gaban halayen jama'a. Muna son lafiya a tsakanin su da farko, kuma wannan shine abinda aikin DiaChallenge yake gabatowa. Don haka, zai zama da amfani a lura da shi ba kawai ga masu fama da cutar siga da danginsu ba, har ma ga mutanen da ba su da alaƙa da cutar, ”in ji Ekaterina.

Baya ga rakiyar wani kwararren masaniyar kimiyyar halittar dabbobi, masanin halayyar dan Adam da mai horo na tsawon watanni 3, mahalarta aikin sun samu cikakkiyar kayan aikin sa-ido na tauraron dan adam wata shida da cikakken binciken likita a farkon aikin da kuma kammalawa. Dangane da sakamakon kowane ɗayan matakan, an ba da mafi kyawun mai aiki da tasiri tare da kyautar kuɗi na 100,000 rubles.

An tsara farkon aikin 14 Satumba: rajista don DiaChallenge Channelsaboda kar a bata farkon abin. Fim din zai kunshi fina-finai 14 wadanda za a shimfida a kan hanyar sadarwar mako.

Ciwon sukari - Babban Iyali. buga hoto

"Mutumin da ke da ciwon sukari yana da hakkin ya yi abin da yake so!" Tattaunawa tare da DiaChallenge mahalarta aikin aikin rayuwar mutane masu ciwon sukari

A ranar 14 ga Satumbar, YouTube ta samar da wani aiki na musamman, wasan farko na gaskiya wanda ya kawo mutane tare da masu cutar siga guda 1. Babban burinsa shine ya karya ra'ayoyin marasa lafiya game da wannan cutar kuma su faɗi abin da kuma yadda za a canza yanayin rayuwar mutumin da ke da ciwon sukari don mafi kyau. Mun nemi ɗan DiaChallenge ɗan wasa Anastasia Martyniuk ya raba mana labarin nata da kuma abubuwan da aka nuna game da aikin.